Renal PatientView - Users Meet the Developers Meeting

A very successful users meeting was attended by about 100 staff, patient and other group representatives, as well as suppliers, Depts of Health, and those interested in patient access to records, in Edinburgh on September 24th 2008. The programme is shown below and useful information and presentations are downloadable at the foot of the page.

Renal PatientView is the renal community's pioneering project that gives patients immediate access to test results and information about their diagnosis and treatment online via the Internet. Three years after its official launch there are over 8,000 patient registrations from 33 of the UK's renal units, with 10-12 more units in the process of installing it. This type of access is on the wish-list of Health departments and some other specialties but Renal is far ahead in implementation.

  • What can we and others learn from our experience?
  • How can we do better?
  • What else would we like to do with it?

Agenda
10.00   Coffee and registration
   
10.30 RPV development and experiences (Chair - Dr Keith SImpson) (10.30 - 11.45)
  • Welcome and Introduction from Neil Turner (local organiser) and Ray Mackey (patient and Chair of the National Kidney Federation (NKF))
  • Origin and development of RPV (Keith Simpson)
  • Enrolment and coverage - latest statistics and inter-unit comparisons (Keith Simpson)
  • Patient’s evaluation of RPV - the first 5 units (Cherry Bartlett, University of York)
    Followed by short presentations of surveys undertaken in other units
  • Staff evaluation of RPV - presentation of current survey results (Neil Turner)
  • Other benefits of RPV
  • What influences uptake and usage?
    Including short comments/presentations from top-enrolling units
12.30 Lunch
   
1.45 Wider perspective: RPV and patient access to records (Chair - Prof Neil Turner)

Introduction and commentary on CKD guidance from NICE (published today)
Dr Donal O'Donoghue, Director ('Tsar') for Renal Services in England

Guest lecture: Electronic record sharing in other specialities and countries (2.15 - 3.00)
Dr Claudia Pagliari, University of Edinburgh eHealth Interdisciplinary Research Group and

England - Healthspace, Connecting for Health's patient access system - progress and vision
Sarah Kennedy, Sandy Scales (Programme Head) and Mat Jordan (Strategy and Requirements manager)

Scotland - Policy and developments
Will Scott, Healthcare Planning, Scottish Government, and others

Wales and Northern Ireland - Policy and developments
   
3.30 Tea / Coffee
   
4.00 Governance and funding, and development and research opportunities (Chair - Prof Neil Turner)
  • Governance arrangements and future funding (Neil Turner)
  • Development plans for 2008/09 (Keith Simpson)
  • Development opportunities: what I’d like to see in Renal PatientView - what else could it do, what else should it do
    • Presentation of some existing proposals and a chance to air more.
  • Research opportunities
5.00 Feedback and open discussion

 

CPD

Credit (5 points) for Continuing Professional Development was awarded by the Royal College of Physicians of Edinburgh. If you attended, you should have received a certificate.