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Clinical Affairs > Renal Registry


The UK Renal Registry

Go to the Registry website

The Renal Registry was established by the Renal Association with support from the Department of Health, the British Association of Paediatric Nephrologists, and the British Transplant Society as a resource for the development of patient care. It is non profit making and as part of the Renal Association is registered as a charitable activity by the Charity Commission.

The UK is increasingly well covered with participation now approaching 100%, although there are differences in data completeness and quality that are being worked on. Units not involved are mostly limited by IT difficulties, not lack of willingness.

Scotland is 100% covered, but with a more limited dataset, by the Scottish Renal Registry. Statistical data from the Scottish Renal Registry is incorporated into Renal Renal Registry reports. The Renal Registry publishes annual reports which can be read on its own website:

More information about the Registry's background and purpose is also available from those pages.

The Registry is funded by a capitation fee for each patient.

Registry committee members

Charlie Tomson (Chairman)
David Ansell (Director)
Hilary Doxford (General Manager)
Andy Williams (Secretary)
Peter Mathieson (RA President)
Kevin Harris (RA Clin Vice President)
David Goldsmith (RA Secretary)

Gordon Bell (RA Executive Committee)
Afzal Chaudry
Simon Davies
Richard Fluck
Janice Harper
Ian John
Adam McLean
Paul Roderick

David Thomas
Nicola Thomas
Damien Fogarty (Northern Ireland)
Wendy Metcalfe (Scottish Renal Registry)
Kieran Donovan (Wales)
Edmund Lamb (Assoc Clin Biochem)
Jonathan Evans (BAPN)
Chris Dudley (BTS)
Nizam Mamode (BTS/Vascular access)
Jenny Scott (Commissioner)

Juliette Kingcombe (DH observer)
Ray Mackey (NKF)
Bob Smith (NKF)
Fergus Caskey (observer)
Mumtaz Goolam (RCN)

 

 

Some Other Renal Registries (not an exhaustive list)
ANZDATAAustralia and New Zealand registry
EuropeERA-EDTA registry
GermanyGerman Renal Registry (Quasi-Niere)
ItalyItalian Registry of Dialysis and Transplantation (RIDT/SIN)
NorwayNorwegian Renal Registry
USAUSRDS
  
Registry of registriesInternational Federation of Renal Registries

 

 

Management Board minutes March 2008downloads: 68 | type: doc | size: 69 kB