Friday 12th July 2024, London
11am – 3pm, Conference Hall, Resource for London, Holloway Road, N7 6PA
Registration opens from 10am with tea/coffee available. 11am start
- An event for Rare Disease Group (RDG) patient representatives and RDG leads which focuses on patient-centred activity and development within the registry.
- There will be interesting presentations and opportunities for networking with fellow patient representatives.
- It will be good to see you there in person!
- On-line option also available.
Draft agenda and other details available here in due course
