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RA Research Committee notes v2 June 2012
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UKKRC15July2011report
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Research comm minutes June11
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Research committee minutes June 2011
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Research Committee minutes 14-02-11
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Minutes of conference call meeting Feb 2011
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Minutes from 3rd July UKKRC meeting with UKCCRN Renal leads
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UKKRC and the UKCCRN - presentation by COS and ANT July 2009
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Clinical Study Group Remit July 2009
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Research Committee report August 2009
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UK Kidney Research Consortium proposal
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Research
The Renal Association does not fund research directly, but the encouragement and promotion of research into renal diseases and their prevention and treatment have been major aims since the creation of the Association. Kidney Research UK (formerly the National Kidney Research Fund) was set up by members of the Renal Association and continues to be the major independent funding body for renal research in the UK. It runs a project grant funding round and a fellowship funding round each year, together with joint funding initiatives (e.g. with MRC and the BRS). More about Kidney Research UK.
Through the Research Committee's newly developing Clinical Forum, the Renal Association encourages and facilitates clinical trials in the field of nephrology. Two other fora are also in development, concerned with in-vitro approaches and cell/whole organism-based research
Various other research initiatives under the broad auspices of the Renal Association are listed below.
| Chair: Prof Fiona Karet Dr Emanuele del'Angelantonio Dr Richard Coward Dr Mark Dockrell Dr Lars Erwig Dr Rachel Lennon Dr Amy-Jayne McKnight Dr Jill Norman Dr Dorothea Nitsch Dr Claire Sharpe Dr Mark Taylor Prof Magdi Yaqoob Dr Damian Forgarty (observer) |
| Contact: Professor Fiona Karet, email - fek1000@cam.ac.uk |
Research initiatives in which the Renal Association is involved
CLINICAL TRIALS
If you are contemplating a clinical trial, you can ask the Research Committee's experts in its Clinical Forum for help and advice. Please contact the Chair in the first instance.
UKKRC CLINICAL STUDY GROUPS
Leaders of the twelve national Clinical Study Groups meet regularly to exchange information and promote potential studies. You can see a brief report of the most recent meeting here.
Genetic susceptibility to renal disease
The research committee contains a genetics working group, which
broadly encompasses the two UKKRC clinical study groups on cystic and non-cystic disorders.
An oversight committee for the Renal DNA collections is chaired by Professor Tim Goodship.
A
National DNA Repository to study genetic susceptibility to glomerulonephritis has been funded by the MRC and by
Kidney Research UK. This collection is now available to researchers -
see also further information on the DNA Network website
The UK Vesicoureteric Reflux (VUR) DNA collection has been funded by the Wellcome Trust, facilitated by Kidney Research UK. It shares governance arrangements as above.
Haemodialysis and exercise
Dr Patrick Naish is coordinating an interest group in this area. Further information will be posted here. Contact him at patrick.naish@hotmail.com
Transplantation - STEPP
This project to investigate long term outcomes (beyond graft failure and death) after renal transplantation has been coordinated by Kidney Research UK in collaboration with the Renal Association and the BTS (2005). Five transplant centres (Guy's, Leeds, Leicester, Oxford, St Helier) will collect data on kidney function, health problems and medication of transplant patients, as well as patients' own reports on their health, quality of life and the impact on their lives of transplant failure. Funding is from a consortium of the pharmaceutical companies Astellas, Roche and Wyeth. More information and updates are available from the project website at www.stepp.org.uk.
Quality Improvements in Chronic Kidney Disease: A Significant Challenge for Primary Care
Kidney Research UK, in collaboration with University Hospital Leicester and St George’s-University of London, have developed a unique, £1.2 million partnership with support from the Health Foundation and Edith Murphy Foundation. The development group for this proposal included members of several bodies including the Renal Association, and the RA is represented on the steering group by Dr Kevin Harris. Two complementary, three-year community research studies, commencing in Summer 2007, have been developed to test and implement a range of quality improvements (QIs) for individuals with chronic kidney disease (CKD) with one project specifically focussing on those patients also having diabetes. The overall objective is to identify a quality improvement (QI) programme delivering the evidence base for better primary care-led interventions, enhance the quality of care and drive forward new advances in the treatment of CKD within the community. More information and updates from KRUK
The UK EPS Registry and DNA Bank
Encapsulating peritoneal sclerosis is a terrible complication of peritoneal dialysis. The fact that it is relatively uncommon makes it difficult to study. It is hoped that this national registry will coordinate our efforts to better understand this disease. For more information, or to get involved, contact Louese Dunn in Manchester. More information.
5-ASA nephrotoxicity
Drs. Ahmad and colleagues are investigating this topic, see here
Research Training for clinicians
The Research Committee has updated its Strategy document on Research Training for Clinicians, see here
Documents and minutes of the Research Committee